tag:blogger.com,1999:blog-1026966222179181004.post2584908679430115850..comments2024-02-25T09:22:30.186-08:00Comments on POSITIVELY PARKINSON'S: 5 Things Every Person with Parkinson's Disease Does Not Need From YouBob Kuhnhttp://www.blogger.com/profile/04002673722921780759noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-1026966222179181004.post-42421890548485869642013-04-17T21:32:23.462-07:002013-04-17T21:32:23.462-07:00I now know what NOT to do. So what response DO YO...I now know what NOT to do. So what response DO YOU WANT. Judy Dendyhttps://www.blogger.com/profile/06995180063993963500noreply@blogger.comtag:blogger.com,1999:blog-1026966222179181004.post-9713543095712978372012-08-21T12:20:50.819-07:002012-08-21T12:20:50.819-07:00I too enjoyed the post. You were able to put your ...I too enjoyed the post. You were able to put your observations of a complex set of experiences into words too often left unspoken.<br /><br />At the APDA Young Onset Center, we work with people well into their 60s,70s, etc...some are newly diagnosed, others have had the disease for years. We are here to help people who are in need of education or support.Julie Sacks, Director, APDA Nat'l Young Onset Centerhttp://www.youngparkinsons.orgnoreply@blogger.comtag:blogger.com,1999:blog-1026966222179181004.post-6619333001447940022011-03-07T13:28:05.616-08:002011-03-07T13:28:05.616-08:00my uncle has PD and it is very hard for my whole f...my uncle has PD and it is very hard for my whole family but we care for him and love him with all our hearts.lunaluna29https://www.blogger.com/profile/06948888872366284243noreply@blogger.comtag:blogger.com,1999:blog-1026966222179181004.post-75137629052153841492010-09-16T06:05:44.045-07:002010-09-16T06:05:44.045-07:00KJ;
PD scares us all at times, and it scares othe...KJ;<br /><br />PD scares us all at times, and it scares others who see the results of this struggle we face and do not know how to respond. Therefore we have two challenges. How do we conquer the fear of living with this? And how do we help others understand what we need (and don't need) in order to reduce their fears. We all have our fears. To me, life is, in part, learning to face them, and thereby encourage others to do likewise. We have the opportunity and responsibility to lead the way. It is our crucible to share (as you are doing). Keep at it, and thanks for your encouragement.<br /><br />Bob <br /><br />PS. Sometimes 58 feels old, but more often I feel "I am an 18 year old trapped in a 58 year old body".Bob Kuhnhttps://www.blogger.com/profile/04002673722921780759noreply@blogger.comtag:blogger.com,1999:blog-1026966222179181004.post-62180241167284921692010-09-15T22:54:07.644-07:002010-09-15T22:54:07.644-07:00I enjoyed this post very much. When I tell people...I enjoyed this post very much. When I tell people I have Parkinson's, one of the most common responses is "my grandmother HAD Parkinson's." Of course, I focus on the "had," so my immediate response is always "well, how old is she?" And I learn then what I already knew - she is neither old nor young ... she isn't. Then I ask, "Well how old was she when she passed away?" The reply, "Oh, she was really old, 65." (Sixty-five is just an example, but almost everyone has thrown out a sixty something age.)<br /><br />Bob, do you think sixty something is old? I don't. And It bothers me that people think I will feel comfort in knowing their loved one lived into their 60's. I know I could die tomorrow, and I don't dwell on the when, but to be honest, I do, at times, dwell on the how. Parkinson's Disease scares me.kjhttps://www.blogger.com/profile/08946113931067256579noreply@blogger.com