tag:blogger.com,1999:blog-1026966222179181004.post3701275464434731832..comments2024-02-25T09:22:30.186-08:00Comments on POSITIVELY PARKINSON'S: Comfort and Joy…with Parkinson’s Disease?Bob Kuhnhttp://www.blogger.com/profile/04002673722921780759noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-1026966222179181004.post-89454521387796686552010-12-29T23:57:47.621-08:002010-12-29T23:57:47.621-08:00Dear LH;
I wish I were able to help more than just...Dear LH;<br />I wish I were able to help more than just write a line or two in hopes of encouraging you to keep on fighting. This time of year can be a burden and I sincerely pray that the load would be lifted from your shoulders, if even temporarily, so that you could know some comfort and joy. Have courage and hope. You are not alone.Bob Kuhnhttps://www.blogger.com/profile/04002673722921780759noreply@blogger.comtag:blogger.com,1999:blog-1026966222179181004.post-59176157090681747532010-12-29T23:05:35.469-08:002010-12-29T23:05:35.469-08:00I am just now getting around to reading this. My ...I am just now getting around to reading this. My holiday season was very busy. That would be the reason that I am just now getting around to reading this. ;0) I am 35 and have YOPD. I often look at my age and tell myself that I should be able to do this, or that, etc. Then, I do it and realize that there is a price to be paid. Example: Probably NOT a good idea to repaint your teenage son's bedroom the week before Christmas. Especially when all of the family will be congregating at your house. Because, you know that means that the house has to be in tip top shape, the dinner must be delicious, and the baked goods better be to die for. Oh, then throw in working 40+ hours a week and taking care of my own family into the picture. Yes...I am nuts! Probably certifiable. <br /><br />Now, I have "hit the wall" so to speak. All of my efforts over the past week has caught up with me. The physical pain from my muscles being so tight in my neck and shoulders has exacerbated my thoracic outlet syndrome. I am in pain and I feel my heart beating in both of my arms. They ache, burn, and throb almost non stop. In addition to that, my carpal tunnel has reared it's ugly head. No doubt, from the hours that I spent delicately cutting in the edge of the wall with paint where the wall met the ceiling. All the while, using extra force to try and stop the tremor in my right hand. Don't feel bad, this is just life for me these days. If you were to see me on the street, you would have no idea of the battle that I am fighting. Even the people closest to me don't really know how bad it is for me. Yet, for some reason, it feels safe to say it here. I guess it's probably because you know what it's like to live with this disease.<br /><br />I am a Nanny for a living and take care of a 16 month old little boy five days a week. Today was an 11 hour day for me. Today, I laid down with him at nap time and we slept for two hours! I was actually quite embarassed to tell his mom that, but I did. See, I only slept for three hours last night because of a tummy issue and the usual physical pain. Even still, I felt guilty for taking a nap. Then, I read your blog. I don't need to feel guilty. Yes, I may be a 35 year old woman, but I do have Parkinson's Disease. No, it doesn't define me. I keep trying to prove that over and over again. I do need to remember to take care of myself. Thanks for the reminder. I hope that your Christmas was enjoyable!Anonymoushttps://www.blogger.com/profile/09162886952409030763noreply@blogger.comtag:blogger.com,1999:blog-1026966222179181004.post-69523049491363298972010-12-28T22:05:25.255-08:002010-12-28T22:05:25.255-08:00Thanks for the encouraging comments. God bless ba...Thanks for the encouraging comments. God bless battery manufacturers!Bob Kuhnhttps://www.blogger.com/profile/04002673722921780759noreply@blogger.comtag:blogger.com,1999:blog-1026966222179181004.post-84878527326484254612010-12-28T20:00:48.862-08:002010-12-28T20:00:48.862-08:00Bob, thank you for writing this excellent narrativ...Bob, thank you for writing this excellent narrative on the holiday season. I too, have this dump truck along with the bulldozer, excavator and two fire trucks for my three grandsons to play with. Their energy is limitless and tiring to us grandparents. Yet, we so enjoy having grandchildren around during this Christmas season. May your grandson bring you and <br />Renee much joy in future days.<br />Best wishes,<br /><br />Don PasiukDon Pasiuknoreply@blogger.comtag:blogger.com,1999:blog-1026966222179181004.post-33831566554078556302010-12-28T11:47:31.217-08:002010-12-28T11:47:31.217-08:00Thank you Bob for this thoughtful piece. I love t...Thank you Bob for this thoughtful piece. I love the photo of you napping with the pets and baby - what a peaceful scene! I so appreciate the time you have taken in the middle of all the tumult to remind us of the importance of personal and spiritual rest, rejuvenation and peace. Lots of love to you and the family. KariKarihttps://www.blogger.com/profile/12281357988731700730noreply@blogger.com