It was seven in the morning, and I was up, dressed and
waiting at the rendezvous point of the one-hour walk that would start four days
of challenges. While characterized as a “retreat”, it was more like an annual boot
camp specifically designed for people with Parkinson's disease. It was appropriately called “Rise”. Rise from sitting at a desk in front
of a computer or a meeting for long hours every day. Rise from the denial,
blissful ignorance and wishful thinking. It was time for a realistic self-assessment. Physical, mental, emotional, and even social
changes needed to be made. Parkinson’s was increasing its grip. My willful
blindness to the deteriorating state of my body, along with the deceptive nature
of my thinking (or lack thereof), could no longer be ignored. Things had to
change.
Some changes come easily. Others are thrust upon us, causing pain. Some changes come about slowly, almost imperceptibly. Whereas others strike unexpectedly like a flash of lightning. We can control some changes in our lives, while others may be out of our reach and inevitable. But how we respond to change, or even initiate it, can be of great significance.
The past weeks were difficult. It has been time to confront
and create a” new normal” where work was not all consuming. Now there were
limited excuses to avoid serious self-care. The days at Rise demanded that I
take initiatives and make changes. It was similar to the stretching that we
engaged in at the boot camp. My muscles are stiff and unyielding despite my
determination. Touching my toes was physically impossible, the equivalent of
bending a 2 x 4 piece of lumber. My hamstrings and related muscles would not
yield, coming to the end of their attempt with my hands touching just below my
knees. Other stretches were equally laughable, disappointing or worse. Not only
had my muscles contracted during recent years, but I ran out of breath easily,
and by coordination was nonexistent. I have a long ways to go.
Some changes come easily. Others are thrust upon us, causing pain. Some changes come about slowly, almost imperceptibly. Whereas others strike unexpectedly like a flash of lightning. We can control some changes in our lives, while others may be out of our reach and inevitable. But how we respond to change, or even initiate it, can be of great significance.
What did I learn from Rise? Whether making changes, or
adapting to the changes thrust upon us, it will be difficult. Let me distill
the lessons of my four days of confronting change. These questions define a way
forward for me.
1.
Why do we want to, or need to, make
changes? This may be the easiest of the following questions. In my case,
Parkinson’s unrelenting attack will increasingly seek to erode the quality of my
life. I owe it myself and others (my wife, family and friends) to do the best
that I can with “the cards I have been dealt”. Life is a gift to be handled
with care, not squandered, abandoned or abused.
2 What exactly needs to change?
Self-assessment produces, in my case at least, a list that is far too long, and
embarrassing to share here. So much needs to change. But we can only do one
thing at a time, and not everything can be a priority. For me, the priorities
fall into a few categories: physical exercise, writing, soul care, and
relational.
3.
How will I bring about needed change?
Here is where the planning and commitment get derailed. For each priority I
need a plan, a roadmap, an assessment of how I will take the necessary
incremental steps to bring about change. It is easy for me to be naïve and
overly optimistic. But I know from failed attempts in the past that grandiose
plans often yield grandiose failures and discouragement.
4 Who will help me make the needed changes?
In many cases, change involves more than myself. To change eating habits, carve
out time for exercise, arranged for quiet time to think, write or read, and
spend time with important relationships all involve others. But, engaging their
assistance will also build accountability and encouragement. I need to be specific
in my requests for the assistance of others.
5 When will I start? Habits developed overnight
are typically lost within a similar period of time. A recent study of 96 people published in The European Journal of Social Psychology found it took
on average 66 days to form a habit. However, this number varies widely
dependent on the person and circumstances, as well as the particular habit. .
It takes more than a 4-day weekend to make
changes. But it’s a start, a much-needed new beginning. Let’s commit to change. See website for Rise details. https://www.risepdretreat.com
Great program! Love this! I sure admire how progressive the PD community is.
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